Sunshine

Two weeks of a high dose of ACTHar, and now we're entering the final two weeks of tapering off of the hormone. Still no signs of seizures/spasms! But as we stop the ACTHar therapy, the more nervous I get. Even though Paisley hasn't been her self during these two weeks, it's still so nice to have a more aware baby. Paisley had her nine month check up and it went well. She's growing just fine!

This is kind of old news, but I haven't had a chance to update: UT Genetics called and gave us the okay to have more children. Brandon and I's chromosomes are normal and they even did extensive research in our 17 chromosome. They give us a 1% chance of this happening in a future pregnancy and that's because there could be something so small that they just can't pick up and it's definitely not impossible. Prenatal testing would be recommended. We not really sure what that means for us and what we're going to do with this new information. We're kind of a mess when it comes to our future family.

But here's a brand new picture of Paisley! I bought her a sock monkey and a Lemon Meringue doll because they have hair to hold onto and she really likes this doll at therapy with hair. Her grip is getting good!